I am torn. As Down syndrome is at last receiving the medical research and attention it deserves. I have to wonder... would I want Delaney any other way?
For decades while there has been great emphasis on various disabilities of cognitive impairments Autism, Cerebral Palsy, etc while Down syndrome has been on the back burner not receiving much attention. It looks like all that is changing. From Cornell's studying the use of choline and Stanford's injections of ß2 adrenergic receptor agonist, all the way to stem cell therapy in Germany the race appears to finally be on!
Luckily, current studies focus on only improving the cognitive impairment and does not change the genetic make up of people with Down syndrome and I am all for that. I want Delaney to have as normal a life as possible, yet not change the core of who she is. I love that she is so sweet, that she was born with such an innocent loving heart and that when she overachieves. Knowing the odds were stacked against her... my pride for her pounds out of my chest. I love my little underdog who doesn't know she was born with a disability and am thankful for choline.
But is it far fetched to imagine that someday soon with the escalation of eugenics at play there will be another avenue (other than prenatal testing and termination) of eliminating Down syndrome all together?
In our case, Delaney would not have been ours had she not had her extra chromosome. Knowing how amazing she is, how she has taught me so much about myself and made me a better person, I cannot imagine Delaney being anyone else.